Away with the fairies..........

My blog of my crazy life and how my Family changed forever in 2006 when our second child was born with 17q21.31 microdeletion syndrome this is our journey through life - Once you choose hope anything is possible!!







Friday, 9 April 2010

Easter Holidays !!!

The Easter Holidays have been fun and hectic as holidays usually are!

Firstly Easter bunny was very kind!!

Mummy and Daddy sent these to Easter bunny!

And the rest of the family sent these to Easter Bunny!!

So there has been lots of chocolate in our house!!!

Also this Easter Lilly had to have her baby jabs re done, as her blood is not showing signs that her baby ones worked and they have gone from her blood stream, so the doctors are hoping that re doing these will work and help give her an immune system? lets hope they work because if not more drastic measures will be taken to give her an immune system!! but she was soo brave having the needles, but later on that day she had a sore arm, bad temperature and fely generally yucky and said the 'nur' nurse was a 'badboy' bless her!

Brainwave
Next week we go to Somerset for the fourth time for Lilly to have therapy at the Brainwave centre, for more information on Brainwave visit this link http://www.brainwave.org.uk/ !
They are brilliant there, and there advice and therapy has helped Lilly soooo much!! From her improved speach, balance, mobility, help with her spd and the list goes on, we love them!! so were very excited to get there again!!

After brainwave we are off the visit Lilly and Ryan's godfather and his girlfriend in Brighton so we can have a few days by the sea chilling, having laughs and catching up with our fab friends there also while were there were going to watch the Brighton Marathon!!!!

The Brighton Marathon!!

Lilly and Ryans wonderful godfather Andrew Russell is running the Brighton marathon on sunday the 18th April for Lilly Mae's Appeal, were so very proud of him so everyone show him your support!!!