Away with the fairies..........

My blog of my crazy life and how my Family changed forever in 2006 when our second child was born with 17q21.31 microdeletion syndrome this is our journey through life - Once you choose hope anything is possible!!







Tuesday, 9 March 2010

Growing up fast!

Lilly seems to be growing up soo quick and is turning into a proper girly girl bless her, All weekend she wanted to spend her time dressed up! either as a fairy or as upsy daisy from nightgarden, here she is as upsy daisy!

She also has took to reading my magazines lately, she looks so cute and funny sat there reading my mags hehe and if she see's nice clothes or pretty ladies she says 'awwww ritty'


Yesterday We had an appointment with orthotics where lilly had plaster casts re done so that she can get new splints as hers are getting too small, she will be getting slightly different splints that will be a little more supportive, lilly was not impressed with having the plaster casts put on so we had to distract her with bubbles! but she liked looking at the pictures they put on the splints and decided on the butterfly pattern!

She was also measured for a special helmet as she has outgrown her old one and has being falling lots lately especially now she has the eye patches so she needs any protection we can give her, but she decided on a 'pink' one!! grrr i tried saying the purple one but she wanted pink! so she'd defo getting girly!!

She also had her IEP this week which went well she still on paper seems to be making no progress at all with her targets, but is making good progress at school in other area's and they are very happy with her, and she seems sooo happy there and loves her support teacher lisa soo much so as long as she is happy thats all that matters!










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