This week's high's and low's!

On Monday we were given the devastating news that Lilly's eye's are still deteriorating which has totally floored us, Lilly now has to wear patches for half of her day to see if this can help her vision at all, but as you can imagine mobility and balance problems and only one eye which is very poor is not a good combination!! as our door frames, tables etc etc are finding as Lilly crashes into them all, its heartbreaking, im just hoping its all going to be worth it, as the doctor doesnt think it will help much if at all as her vision is so bad but we have to try anything right now.

This week we also had a meeting with parent partnership who are advising us for the end of the month as we have a combines CAF meeting and Lilly's first SEN statement meeting, she doesnt think dual schooling will be a problem at all in the future so thats fantastic news.

Some 'big girl news' this week is Lilly thinks her cot is for babies but as we are soon to be moving home temporarily while some work is done on our home, there isnt enough time to get a new bed to have to take down again to move and as we still don't think she could manage a bed without falling even with rails and hurting herself, we got her a ready bed to see what she would make of a 'big girls bed' well she LOVES it , she still isnt sleeping all night but is settling better and accepting bed easier.

Some exciting news for Lilly is that today i booked her horse riding lessons with the riding for the disabled company, they think this will help her balance, confidence, speach and the motion is also great for her sensory processing disorder, and as most people know she LOVES horses so i can't wait to see her face next week!!